I am the mother of four children, but Mattie, my fourth child, is the only one who has survived a rare form of muscular dystrophy called mitochondrial myopathy. It was only after Mattie was born that I learned I had the adult form of muscular dystrophy and that my children also had this disease. At the age of ten, while Mattie was in a coma, I was told that if he did wake up, he…